What is CF?

Cystic Fibrosis is a progressive disease that primarily affects the lungs and digestive system because it makes mucus thick and sticky.  People with CF have a mutation in both of the Cystic Fibrosis Transmembrane Conductance Regulator (CFTR) genes or simply the CF genes.  Everyone has two copies of the CF gene but for most people, these genes are normal.  Some people may have one mutated CF gene but they do not have Cystic Fibrosis - they are referred to as "carriers."  With both parents being carriers, Mallory and Camden each had a 1 in 4 chance of having two mutated CFTR genes.

30,000 people in the United States have Cystic Fibrosis.  There are 127 known mutations that cause CF, but the most common mutation is ΔF508. Both Mallory and Camden have this particular mutation. There have been some huge advancements made in the last couple of years for treating CF, but we still have a long way to go. Too many young lives are being cut short because of CF. 

How can you help?  Join us in supporting the CF Foundation (CFF) and their Great Strides Walk.  The CFF works tirelessly to find lifesaving new therapies, and one day, a lifelong cure for all people living with this devastating disease.  By supporting Twin Triumph, you're supporting CF research and awareness that could one day save Mallory and Camden's lives.